A blog about living with ALS - and more

Dance, Baby, Dance

The year before I had symptoms of ALS, I tried to  teach myself to dance. I’ve written earlier about my inability to sing. In addition to that deficit, I have no rhythm. I clap off beat. I’m very stiff in my shoulders, so I can’t do the thing with relaxing my shoulders like people who have moves do.  

I took ballroom dancing lessons over thirty years ago with my boyfriend at the time. I love ballroom dancing, because it has steps. No improvising required, plus stiff shoulders are not a disadvantage in many ballroom dances. I learned the foxtrot (slow, slow, quick, quick), the rumba (quick, quick, slow),  the waltz (One, two, three, One, two, three), and the swing (slow, slow, quick, quick – but not the same direction or  tempo as the foxtrot). Moreover, I’m great at following if my partner is a good leader. Or so I thought. 

When I went to my 25th college reunion, I planned that I would go to the swing dance club’s event. The swing dance club wasn’t there in my day. I told myself that if I made a fool of myself, it didn’t matter, because I would never see those people again. (All of my college friends were in different years from me, so they weren’t there.) 

It was good that I had low expectations of myself. I participated in the lesson offered prior to the dance, and I saw that this group started with the rock back (quick, quick) steps, which was different from how I learned. After the lesson, a recent graduate asked me if I wanted to dance. I warned him that it had been a long time since I had danced. We got off to a good start. Then he made the mistake of saying, “you remember!” That was all it took to throw me off. I didn’t get back the rhythm for the rest of the song. When the same guy was looking for someone to dance with later on, I offered to dance, and he just walked away. 

Someone else asked me to dance, and I reluctantly accepted. I was a mess. After the song ended, I asked him if he wanted to continue. He backed away from me, waving both hands, as if warding me away. I spent the rest of the event having an enjoyable conversation with the parents of a current graduate. 

Later that spring I was at a bar mitzvah reception with my kids, and the last song the deejay played was Pete Townshend’s Let My Love Open the Door. I danced with Max, and I hummed it all the way home. That song brings me joy to this day, because whenever I hear it, I feel the same giddiness I felt when I danced on that day.

That night I embarked on a quest to develop rhythm. I somehow found a website called I Hate to Dance, which was perfect. Its intended audience is men who dread dancing, but it’s for anyone who is rhythmically challenged. The website starts with the basics: feeling the beat, clapping on the up beat, etc. It goes on to teach how to do several types of dances that one is likely to need on various occasions. Most notable for me is the fact that the website teaches a survival tip for any dance:  a simple step to the side, feet together, and repeat to the other side, all on the beat. I practiced over and over again. I also taught Max and his best friend how to do the Electric Slide and the Macarena. We had so much fun! 

Now my arms and legs are paralyzed. My dancing days are behind me, but I’m still using the I Hate Dancing website, and I dance in my head whenever I listen to my dancing playlist. I’m going to be ready for the great beyond or my next life. As my favorite choreographer, Bob Fosse, said, “It’s showtime!”

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5 Comments

  1. Sara Esrick

    I can see you eating in your dreams and dancing again in your next life! Thanks for sharing, dear Jessie. XOXO

  2. Stephanie Carmel

    I love your stories Jessie. Thank you for sharing this part of you. ❤️

  3. Linda Towbin

    Your blog reminds me of the last Jewish circle dance joined. I THOUGHT I got the steps right. But the person next to me told me to look at the other dancers and copy what they are doing.

    ❤️Mom

  4. Jennifer Love

    Dear Jess,

    It’s a joy to learn about your love of dancing! I hadn’t realized (or remembered?) that you attended the swing dance club’s event at your 25th reunion! I am impressed by your courage and inspiration (and by your noticing the event in the reunion schedule–I never did at mine). I’m sorry you didn’t get to dance more at the swing dance event–those were two silly fellows for not taking you up on a second chance to dance.

    I love that you are still using the I Hate to Dance website. The guidelines given there for the “survival tip for any dance” sound very helpful, and wonderfully masterable. I plan to practice the step-to-each-side move now that I’ve heard about it.

    Like you, I love dancing (theoretically). I took adult ballet classes at my teaching institution, Lane Community College, for about three years starting when I was 40 (I’m 56 now). I couldn’t really do jetés or pirouettes, but I still loved ballet–the fluid movements, the classical music. Our wonderful teacher, Florabelle Moses, saw that I had caught the bug and was encouraging, with restraints (“I don’t think you should be doing turns”). I was going at ballet with so much enthusiasm, staying after class to practice, when I noticed that some of my toes were starting to go permanently numb. Later a podiatrist told me, “With these feet, you really shouldn’t be doing ballet.”

    I would love to hear more about your experiences with dancing. I’m curious if you have some favorite movies with dancing. Mine are probably mostly Ginger Rogers & Fred Astaire movies, and other oldies like Singin’ in the Rain.

    Thank you for writing about dance, Jess, and for giving me a chance to do the same.

    Love,
    Jenny

  5. Julia Chase

    Dear Jessie,
    I am not much of a dancer either, but Joe loves to dance! Luckily for me, he just moves “60’s style” to the beat that he hears. He doesn’t make any notice of what I am doing. I just move around (more slowly) and try to look like I am having fun.

    One time we ended up at a Rave-type Dance at a Young Person’s hotel in Portland, I couldn’t stand the (loud awful) music or the 20+ minutes of endless dancing! I had to go back to our room, and Joe just stayed and danced by himself. 🙂

    We tried ballroom dance lessons on several occasions, but following certain steps is not his style.

    These days when we go dancing we are by far the oldest people there. I hate it when people come up to us and say “Wow, you guys are good. I hope I will be like you when I get to be your age!”

    Meanwhile I go because Joe loves it so much. And it is good exercise.

    Thanks for sharing your funny stories.

    With love,
    Julia

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