A blog about living with ALS - and more

Gratitude

My self imposed goal is to publish a blog post once a month. I’m working on a post, but it is far  from being ready to publish. Instead of missing this month, I will take advantage of this season of thanksgiving to publish a brief post about my gratitude. 

As many of you know, in February of 2022, my neurologist estimated that I had six months to live. I’m so grateful that he was wrong. At that time, Ateka, my caregiver, predicted that I would live to see my younger son graduate from high school. Amazingly, he is a senior now and only 7 months away from this incredible milestone (no evil eye).

Moreover, I’m thrilled that my quality of life is such that I want to live. I don’t get out much, because I avoid crowds, but  I am never bored. I am grateful for everyone who makes life worth living, starting with my family and friends, especially my frequent visitors: Sandra, Julia, and Sara. 

I’m enormously grateful  to be able to write this blog and for having such loyal readers. I love all your comments and encouragement each month.

And so much joy and surprises have come from writing it. Most recently, Jim Joseph contacted me. He’s the person who created the I Hate to Dance website, which I referenced in my “Dance, Baby, Dance” post (you can read his comment here– scroll down to the comments). It’s so exciting to hear from people I’ve admired from afar, not only Jim, but Tom Angleberger too.

Barry and I have been reading the new biography about the life and death of Lou Gehrig. The technology I use as a person living with ALS today really is amazing. I’m truly grateful that I have this creative outlet for my thoughts and my voice. 

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Dance, Baby, Dance

6 Comments

  1. Linda Towbin

    An amazing and inspiring (though not surprising) blog.
    ❤️Mom

  2. Janet Munger

    I am so grateful for you, Jessie!

  3. Carrie O’Brien

    Always the GOAT, Ms Towbin. How on earth is your second son a senior!?!?! How are they aging whilst I am not :). Keeping kicking ass and taking names. My admiration for you never wanes. ❤️❤️❤️

  4. Alicia McCormick

    Jessica, I , too, asked for those same mile stones. I’m still here. I love you. And wish you peace!

  5. Sephrah Towbin

    Love you Jessie.

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